Shot in the Dark - Sudden Hearing Loss - Anyone Experience?

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ddps

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  • Salk SS 9.5 / McIntosh MA8900 / Auralic Altair
Re: Shot in the Dark - Sudden Hearing Loss - Anyone Experience?
« Reply #20 on: 9 May 2020, 06:16 pm »
Thanks Drew.

I waited 5 days, which hopefully doesn't hurt me long term.  That is exactly the diagnosis (SSHL) so far.  I'm on the slam pack, and stretching it 9 days. Thought it had improved a bit yesterday, but back this AM.  Been 8 days since it happened.  Just keeping my fingers crossed. 

Glad to know yours cleared up. A little bit of hope.

Yes, the slam pack is a high dose that tapers off over 9 days. It's very important not to suddenly stop a high dose of prednisone - your adrenal function could get seriously messed up.

Good luck! You will need several weeks to know your final prognosis. It will get better and worse for a period.
« Last Edit: 9 May 2020, 11:25 pm by ddps »

Barrelfish

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Re: Shot in the Dark - Sudden Hearing Loss - Anyone Experience?
« Reply #21 on: 11 May 2020, 12:00 am »
You mentioned you have a trusted ENT you have gone to so that really is the best course of action and source of information.  Not to discount what others have said but there are so many things that could impact hearing, getting tested for some of the physical aspects and then following up with an audiologist to see if you have permanent loss is really the best thing you can do.

I am soon to be 49 and due to hearing loss in the the family, had to get my two hearing aids when I was roughly 35 years old.  Best thing I ever did.

Not being able to hear things without having them repeated multiple times, doing the mumbled nod when you can't understand people in meetings, the anxiousness that comes along with not being able to hear well, etc. are all things that forced me to get them at a younger than normal age.  (And yes, I have two...many people need two but only go with one for the 'worst' ear.)  The day that I got my first pair and heard things I hadn't for a few years was just a 'wow' experience.

(I also had/have bad tinnitus so I would "joke" that I can't hear but I never have a moment of silence.  Heading aids help with tinnitus too.)

Hopefully you don't have permanent loss but if you do, don't hesitate to get hearing aids as soon as possible.  They are well worth it.

This is why I hope to one day get some Salks.  It would be nice to have something that sounds so good that they breakthrough the barrier of hearing loss, albeit with the help of hearing aids!   :D

ddps

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  • Salk SS 9.5 / McIntosh MA8900 / Auralic Altair
Re: Shot in the Dark - Sudden Hearing Loss - Anyone Experience?
« Reply #22 on: 14 May 2020, 02:24 pm »
Thanks Drew.

I waited 5 days, which hopefully doesn't hurt me long term.  That is exactly the diagnosis (SSHL) so far.  I'm on the slam pack, and stretching it 9 days. Thought it had improved a bit yesterday, but back this AM.  Been 8 days since it happened.  Just keeping my fingers crossed. 

Glad to know yours cleared up. A little bit of hope.

How are things progressing, @DEP14?
« Last Edit: 14 May 2020, 07:42 pm by ddps »

DEP14

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Re: Shot in the Dark - Sudden Hearing Loss - Anyone Experience?
« Reply #23 on: 14 May 2020, 09:30 pm »
How are things progressing, @DEP14?

Thanks for asking.

I've had a moment here or there where I think (hope) it's improved a bit, but then yesterday it was pretty awful.  Did the first pack, which they said was a starting dose.  Yesterday they cranked up the Predisone...  72 pills over the next 14 days now.  But as of now, no real change.  Trying to stay upbeat.  At least I'm not dizzy, I can still hear my kids absolutely fine.

It's just this absolute feeling that the ear is plugged, the ringing at night (when I can hear it mainly) and of course listening to music really isn't as much fun right now. 

But, staying upbeat!  Back in on the 22nd for another test... lots of time between now and then.

Sometimes when I wake up it seems a bit better, then when standing it seems worse.  But, could be an illusion of sorts.

Just have to stay positive about it.
« Last Edit: 15 May 2020, 02:00 am by DEP14 »

shakey

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Re: Shot in the Dark - Sudden Hearing Loss - Anyone Experience?
« Reply #24 on: 14 May 2020, 11:02 pm »
My teenage daughter suffered from SSHL a few years ago. We took her to a top specialist in NYC who injected steroids directly into the nerve. It helped a little but she now needs a hearing aid. In her case they determined it was caused by a live virus from the MMR vaccine. The doctor told us that it can be months after taking the vaccine as the live virus can linger in the body. Did you get the flu shot?

DEP14

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Re: Shot in the Dark - Sudden Hearing Loss - Anyone Experience?
« Reply #25 on: 15 May 2020, 01:59 am »
Shakey, no vaccines etc.

I fit all the classic symptoms of SSHL.  Just hoping!

DEP14

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Re: Shot in the Dark - Sudden Hearing Loss - Anyone Experience?
« Reply #26 on: 15 May 2020, 02:17 am »
Shakey, no vaccines etc.

I fit all the classic symptoms of SSHL.  Just hoping!  Back in for a test on the 22nd, and after this round they have talked injection and possibly MRI to rule out anything more serious. 

People deal with a lot worse, just kind of stinks as music is part of my sanity!  Particularly now during this pandemic!



DEP14

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Re: Shot in the Dark - Sudden Hearing Loss - Anyone Experience?
« Reply #27 on: 26 May 2020, 01:22 pm »
A couple members were kind enough to send me PM's asking me how it was going.

Last Friday marked 3 weeks since my symptoms first appeared.  I've been on high dose Predisone for 3 weeks now (feeling great otherwise now!).

I have had some moments that I thought it was really getting better, things seemed normal, or almost normal.  That really started a week ago Monday.  Unfortunately it's not progressed from that.  I had another hearing test on Friday and my left ear still has major hearing loss in high frequencies.  So, 2 more weeks of Predisone, however if it isn't significantly better this week I will be going for an MRI to rule out anything serious.  Argh!

Personally, I just think it's something with the tube being lazy.  Though the strange thing is that when I wake up it seems pretty good, but when standing it gets much, much worse.

Fingers crossed, people deal with a lot worse.  I can hear people talking etc no problem. So that's good.


Mudslide

Re: Shot in the Dark - Sudden Hearing Loss - Anyone Experience?
« Reply #28 on: 26 May 2020, 01:53 pm »
Sorry for your struggles.  Still no dizziness?

DEP14

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Re: Shot in the Dark - Sudden Hearing Loss - Anyone Experience?
« Reply #29 on: 26 May 2020, 01:54 pm »
Sorry for your struggles.  Still no dizziness?

None, and for that I am really, really thankful.

Big Red Machine

Re: Shot in the Dark - Sudden Hearing Loss - Anyone Experience?
« Reply #30 on: 26 May 2020, 04:57 pm »


Personally, I just think it's something with the tube being lazy.  Though the strange thing is that when I wake up it seems pretty good, but when standing it gets much, much worse.

\

Well you could stand on your head and listen, or turn your speakers upside down!

Hopefully it's just kick in the head by a mule, fell down a well thing and it'll all be good again.
https://www.youtube.com/watch?v=pag94D1fRHE